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Tips to Avoid Caregiver Burnout When Dealing with Alzheimer's and Wandering

Caregiver Linda did everything she could to keep her husband at home. Family, including grandchildren, and neighbors were willing to help…at first. After a few months, they burned out. So did Linda. “My job was on the line and, one day, I even nodded off at a red light. I guess three hours of sleep followed by eight hours of work was not good for me.”

Caring for an individual living with a dementia such as Alzheimer’s disease is among the most stressful of caregiving situations. Many caregivers lose sleep because they are afraid of what will happen to their loved one if left unattended. Others give up their jobs and social circles because they fear leaving a family member at home alone.

Following are suggestions from Home Instead, Inc., franchisor of the Home Instead Senior Care® network:

  • Keep a journal to identify what you are feeling. Writing down what is happening and what you are feeling can help tap into your emotions.

  • Talk with a friend. Sometimes talking with someone who knows and loves us can help us figure out what we are feeling.

  • Find a support group. Look to your local faith community or the Alzheimer’s Association’s Community Resource Finder to connect with others who are going through the same thing. Consider joining the Remember for Alzheimer’s Facebook page of more than 270,000 followers who are struggling with many of these same issues.

  • Don’t be afraid to ask. Consider taking people up on their offers to help whether it’s dinner or carpool assistance.

  • Get help. If there is a specific task that is difficult, consider asking someone else to do it. Call your local Alzheimer’s Association and Home Instead Senior Care office for more information about how these organizations could assist you. The Alzheimer’s Association has a free 24/7 help line with master-level clinicians to talk with family members who are over-burdened. Call 1-800-272-3900 if you need help.

  • Take a break. Respite care, or a break, is not just a “nice” thing. It’s a necessity when caring for someone with dementia. Learn more about the Hilarity for Charity® grant program and how to apply for a grant. Or contact your local Home Instead Senior Care office, Alzheimer’s Association chapter or Area Agency on Aging for additional resources and support.

  • Begin with a mini-vacation. Create a list of things you enjoy doing such as reading, watching TV, listening to music, sitting outside and having coffee with a friend. Then take one or two 15-minute mini-breaks each day to do something on your list.

  • Take care of yourself. Good self-care contributes to emotional well-being and helps better manage stress and the emotions that accompany caregiving.

  • Let it go. Ask yourself if something is really important – if it matters. That practice will likely keep you from getting upset about things you can just let go.

Also, go to the Alzheimer’s Association’s Alzheimer’s and Dementia Caregiver Center for additional resources. And visit ConfidencetoCare.com for information about a book that offers valuable insight into dementia diseases and ways to manage caregiver stress. You can also download a free mobile app to get on-the-go Alzheimer’s tips for helping to manage stressful situations.

Thoughts and stories from others

  1. October 31, 2016 at 07:59 pm
    Posted by Gwen

    I hv had my mom over the past 9 uears minus 1 year when she was in a fami adult hm. Shes suffering from dementia related alzheimer and effects from a stroke where she is now in a wheelchair. The fam adult home owner was overwhelmed with 5 other ladies and it was just her and her husband. She would not tk her back even for 2 weeks while i went on vacation. So now 1. I put in for medicaid and they found some trust fund that we hv no knowledge about so they wont pay and 2. She has a retirement and soc sec payments but not enuff to get her into a facility. I nd help!!!!

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