Live chat with expert: Stephanie J. Monroe and Ginny Biggar

We have officially crossed the one-year mark since the COVID-19 was declared a pandemic by the World Health Organization. While the pandemic has significantly impacted us all, those living with Alzheimer’s disease and their caregivers have experienced devastating effects. New survey results released by UsAgainstAlzheimer’s (UsA2) A-LIST® revealed that 72% of caregivers observed a decline in their loved ones’ memory or behaviors since the start of the pandemic. 84% of caregivers also reported having one or more stress symptoms and 81% reported feeling more isolated.  

Join Home Instead gerontologist and caregiver advocate Dr. Lakelyn Hogan as she talks with Ginny Biggar and Stephanie Monroe from UsA2 as they review how the pandemic has impacted dementia family caregivers and lessons learned for the future. We’ll review: 

  • Results of the UsA2 A-LIST® survey on the impact the pandemic had on individuals living with dementia and their caregivers. 
  • Challenges specific to dementia family caregivers during the pandemic. 
  • Tips for family caregivers as they continue to navigate COVID-19. 
  • Ways the pandemic will impact the future of dementia caregiving.

About the expert

Stephanie J. Monroe and Ginny Biggar
Stephanie J. Monroe is Director of Equity and Access and Executive Director of AfricanAmericansAgainstAlzheimer’s, a network of UsAgainstAlzheimer’s (UsA2), founded in 2013. It’s the first national network created specifically to raise awareness of the impact of Alzheimer’s health disparities on communities of color and women, the need for greater minority participation in clinical trials, and the importance of all communities to begin to focusing on brain health and Alzheimer’s risk reduction strategies across the lifespan. Stephanie is an attorney with three decades of federal public policy experience including the role of Assistant Secretary of Education for Civil Rights. Additionally, she’s held key staff positions in the United States Congress, including Chief Counsel of the U.S. Senate Committee on Health, Education, Labor and Pensions, as well as Staff Director of the Senate Subcommittee on Children and Families. Ginny Biggar is Executive Director of Communities at UsAgaininstAlzheimer’s. She leads UsA2’s Patient Voice program working with people living with Alzheimer’s and other dementias, and family caregivers helping them tell their stories through research, podcasts, blogs, speeches, books and news media. This includes leading the team that launched UsA2’s A-LIST®, a pioneering online cohort of 8,000+ members with or at risk for dementia and caregivers. Through the What Matters Most Insights study, the A-LIST conducts research on key topics for those with dementia and caregivers to inform national advocacy and policy, as well as research, drug development and regulatory decisions. Her ability to tell compelling stories was honed during her ten years as a reporter and producer for National Public Radio in Los Angeles and Washington, D.C., and WBUR-FM in Boston, respectively.

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