Live chat with expert: Michael Ellenbogen

Listen as Michael Ellenbogen and Lakelyn Hogan of Home Instead Senior Care talk about the dementia diagnosis journey. Michael lived with a diagnosis of younger-onset Alzheimer’s disease for 10 years before he received new test results indicating his diagnosis of Alzheimer’s was in question. He shares about his experience and lessons learned along the way that may help other individuals on a quest for an accurate diagnosis.

  • Hear more about Michael’s own diagnosis journey
  • Understand the benefits of early diagnosis and the risks of mis-diagnosis
  • Learn how you can help advocate for better diagnosis processes and dementia research

About the expert

Michael Ellenbogen
Michael Ellenbogen is a world-renowned advocate for individuals with dementia and speaks openly about his own 20+ year dementia diagnosis journey. Prior to his diagnosis, Michael was a network operations manager for a Fortune 500 financial institution. At the age of 39, he was told that his cognitive issues were due to stress. At the age of 49, he was diagnosed with young-onset Alzheimer's disease. Michael became involved in numerous local, national and international organizations, lending his voice and experience to help advance Alzheimer’s research and advocate for support. He was featured in the Alzheimer's Disease International's 2012 World Alzheimer's Report and has represented people living with dementia at the World Health Organization. He also wrote a book about his journey titled “From the Corner Office to Alzheimer’s.” At the age of 59, Michael received a new diagnostic test that delivered shocking results: he did not, in fact, have Alzheimer’s disease. Instead, neurologists have placed his form of dementia into a fairly new category called suspected non-Alzheimer’s pathophysiology (SNAP). He continues to share his story and has become a champion for improving diagnosis processes.

4 thoughts on “The Diagnosis Journey

  • Mary

    Primary care physician asked me the date of the week and my answering that made him dismiss my concern. Neurologist gave me series of simple tests based on booklet that to me didn’t prove anything – I knew how much I used to know that I couldn’t remember – names, especially. I resent having my concerns dismissed so lightly

    I’ll look up semantic dementia.

  • Judith Penrose

    This touched my heart deeply. I’ve been searching for answers and dealing with Alzheimer’s alone for decades when I lost my wonderful Father in 1990 from this debilitating disease that carries a negative stigma that I’ve been attempting to rectify alone for years. Unfortunately, now my wonderful Brother suffers. Your 10 Request Article has hit my core. I have believed those requests and lived it and would be agreed to by every Alzheimer’s patient out there. I will pass it along to everyone I know and more. Thank you!

  • Lance C. Cowan

    I have MCI (Mild Cognitive Impairment) that has recently started to worsen? Could it be transitioning to Alsymers Disease ?
    Peace Out…

  • Lance C. Cowan

    I have Mild Cognitive Impairment (MCI) but it has worsened of late which has me starting to worry about Alsymers Disease!
    Any suggestions.I am in Canada with good health care !
    Peace Out…

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