My sister is in Stage 6 and is no longer able to formulate coherent sentences. I always feel awkward when we’re introduced to new people and she starts in to an endless loop of nonsense. The confused expressions are often priceless, but I do feel like I need to clue them in right away. Do others have this concern? If yes, how do you mention the Alzheimer’s without making your loved one feel uncomfortable?
This is a wonderful question because this is something I am very adamant about! It is time for everyone to come out of the closet and be open and honest about dementia and Alzheimer’s Disease. There is nothing to be ashamed of. Go ahead and discuss it, educate others and let your loved one know that it is ok to tell people and they don’t need to be embarrassed. This is the only way the world will change and start accepting our loved ones and having more open dialogues about what changes need to be made to help everyone involved.
Remember back not too many years ago, cancer was whispered about and seldom discussed in the open. What a change in thinking and in return what a change in support and understanding patients have now. I think the only reason people are ashamed is because they have been taught they should be ashamed. With open discussions and dialogue, each time you and your sister explain her circumstances, you are educating and helping the greater cause.